A Singer with a Rare Disease Courageously Facing Life

The street performer Qiong Yu, who suffers from the rare Marfan syndrome, is someone you’ll often see performing in Taipei Station’s basement mall.  She has gone through countless operations, is blind in her right eye and has only partial   vision in her left eye. In addition to this, as a direct result of her disease she is unusually tall at 182 centimeters.  The hugely optimistic Qiong Yu, brushes everything off as ‘ troublesome’.  In the beginning, due to Qiong Yu’s peculiar appearance, she found it extremely difficult to interact with people.  However, owing to her strong religious faith and a tenacious personality, she slowly began to begin facing the world and managed to earn herself a place in university.  As a result of a swollen principle artery, she once had to undergo 17 hours of surgery, an incident that made her realize how to savor each and every moment of life.  Currently, every weekend Qiong Yu uses her exquisite voice to warm the hearts of passers-by, as well as using her valuable life experience to help others find the courage to optimistically face life.

Qiong Yu – A Singer with a Rare Disease Courageously Facing Life (by CJ Hobe)
URL: http://www.peopo.org/news/57532

(以下為中文對照)

罕病歌手瓊玉 勇敢活出自己 (by公民記者hobe)
URL: http://www.peopo.org/news/57532     

照片

在台北車站捷運地下街，常常可以見到一位罕見疾病歌手瓊玉在表演，她罹患「馬凡氏症」，從小到大經歷多次手術，右眼全盲、左眼視力僅存0.2，也因為這個病症，讓她擁有非比尋常182公分的身高，不過樂觀的瓊玉用中文諧音把它稱為「麻煩事」一大堆。剛開始，瓊玉曾經因為異樣眼光而不敢面對人群，不過慢慢的因為信仰與不服輸的個性，漸漸敢走出人群，也順利考上大學。之後，她有一次因為主動脈血管脹大，接受了長達17小時的手術，讓她更懂得把握生命每分每秒。現在，每個周末瓊玉都會以她美妙的歌聲，溫暖路人的心；她也會擔任教育講師，用自己的故事勉勵更多朋友樂觀面對人生。